Affiliate Update 2011

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Volume 17-- Issue 2

3/16/2011 5:52:32 PM

February 15 CP of NYS E-Newsletter

Click CP of News 2-15-11 for February 15 CP of NYS E-Newsletter.



¨       NYS Budget Update

¨       Looking for Compelling Stories About People our Affiliates Support and Serve

¨       VESID VR Component Becomes ACCES

¨       March is Developmental Disabilities Awareness Month

¨       Jawonio CEO Named to Rockland County Advisory Panel

¨       Inspire CEO Honored

¨       Taking the First Step

¨       Happiness House to Hold One-Day Autism Conference in March

¨       Patriots’ Day Run Will Support Program for Youth With Disabilities

¨       RFP for Siblings Needs Assessment

¨       Nominations for 2011 Union Square Awards

¨       The Little Things Matter




Governor Andrew Cuomo has proposed a $132.9 billion budget for the state's fiscal year beginning April 1, 2011. The Governor proposed closing the projected $10 billion deficit with cuts in Medicaid, education, funding for state operations and warned that as many as 9,800 state workers could be laid off if public employee unions do not give up wage and benefit increases. The Governor did not raise taxes and has refused to extend the “millionaire’s tax,” or income tax surcharge on individuals making more than $200,000 and couples making more than $300,000 annually which expires this year.


The bulk of the budget cuts are from Medicaid and education which the Governor said caused all but $1 billion of the deficit due to the 13% growth and the loss of federal stimulus funding ($5.6 billion). 


Facts About a Scheduled 13.3% Increase in Medicaid Payments


The rates and formulas relevant to this year’s State budget call for State spending on New York’s Medicaid program to increase from $15.9 billion in 2010-11 to $18 billion in 2011-12, an increase of $2.1 billion, or 13.3%. An October 2010 Division of Budget (DOB) document describes its cause: “Overall Medicaid growth results, in part, from the takeover of local Medicaid costs under the cap, the combination of projected increases in service utilization, and medical care cost inflation which affects nearly all categories of service, as well as rising enrollment levels. In addition, the payment of an extra weekly cycle to providers adds an estimated $400 million in 2011-12.”


  1. Enrollment, utilization, and the State takeover of local Medicaid costs account for 9.2 percentage points of the 13.3% increase (70%).
  2. The “trend factor” payment to providers to cover price inflation accounts for only 1.5 percentage points of the 13.3% (11%).
  3. The payment of “an extra weekly cycle to providers” accounts for 2.6 percentage points of the 13.3% (19%).


Brief Highlights of What we Know is in the Governor’s Budget Request



  • Total, statewide cut of at least 5 to 6%At the recent Office for People With Developmental Disabilities (OPWDD) Budget briefing with DOB, OPWDD, the Governor's Office and provider associations, we were told that the Aid to Localities funding will be cut by 5-6% (Aid to Localities represents all of the services which voluntary providers operate). DOB explained that while a comparison of year-to-year appropriations for Aid to Localities shows only a 2.7% reduction, there are certain "expectations" that require additional funding in the coming budget. In other words, the year-to-year appropriation comparison fails to reflect full funding in FY 2011-12 for initiatives begun in FY 2010-11. These include, among other initiatives, new development opportunities and full, as opposed to part year, funding for a trend factor in New York City due to the July 1 beginning of the City's fiscal year. DOB admitted that when all of this is taken into account the actual cut is 5-6%. These reductions will be taken in the following two ways:


    1. Reform Financing of “Various OPWDD Programs through rate, price and contract adjustments to both residential and non-residential services to reflect efficiencies, program restructurings and other cost efficiencies. These reforms include more aggressive reviews of providers’ overall surplus/loss analysis, as well as further constraints on administrative and non-personal service costs. Funding for workshop, day training and other day services will be reduced to encourage placements into other, more effective community-based integrated day and employment programs. In addition, funding for transportation and residential habilitation services delivered in supervised Individualized Residential Alternative programs will be reduced to encourage efficiencies. (2011-12 Value: $73 million; 2012-13 Value: $98 million)” – These are state share only savings and minimally need to be doubled to reflect the impact. We will be gathering further details on this and will provide them to you as soon as we have them.


    1. Delay Development of New Community Residential Facilities. Delay the development of OPWDD community adult and children residential opportunities while investing to add 2,300 lower-cost residential and/or non-residential opportunities to support individuals and their families. Maintain local aid at 2010-11 levels. (2011-12 Value: $40 million; 2012-13 Value: $35 million) – These are state share only savings and minimally need to be doubled to reflect the impact.


  • No Trend
  • No Health Care Adjustment (HCA)
  • Forgo Planned Cost of Living Adjustments/Rate Increases
  • Ten Percent General Fund State Operations Reduction

DOH / Early Intervention

  • Recalibrate Early Intervention Rates. To make the cost of Early Intervention more affordable, a variety of changes will be made to payments for Early Intervention providers. These include the following:


    • Rate Reductions of 10 percent for Early Intervention. A 10 percent across the board rate reduction will be applied to all Early Intervention service rates.  (2011-12 Value: $11.1 million; 2012-13 Value: $24.3 million)


    • Restructure Early Intervention Billing Practices. Providers of Early Intervention that receive more than $500,000 in Medicaid revenue annually will be required to directly seek reimbursement from Medicaid and private insurance prior to seeking payment from municipalities for these services. (2011-12 Value: $0.5 million; 2012-13 Value: $1.9 million)


    • Maximize Commercial Insurance Reimbursement for Early Intervention. Insurance companies will be required to pay legitimate claims for Early Intervention Services.  Currently, only $13 million, or 2 percent of total gross program costs are paid by private insurance companies, although over 40 percent of children enrolled in the program are covered by private insurance. (2011-12 Value: $0 million; 2012-13 Value: $24.6 million)


    • Recover Early Intervention Overpayment for Medicaid Transportation. Achieve savings due to recoupment of $6.2 million in the State’s overpayment for Medicaid transportation costs. This proposal will recover the overpayment from counties. (2011-12 Value: $6.2 million; 2012-13 Value: $0 million)


    • Modify Early Intervention Service Coordination Rates to Use Capitation. In order to achieve programmatic efficiencies, capitated rates will replace the current methodology of billing in 15-minute increments for service coordination. Service coordination will be paid at a single rate per event or per month regardless of the amount of time spent managing the child’s case. (2011-12 Value: $0.3 million; 2012- 13 Value: $0.9 million)


    • Bill Early Intervention Services in 15-Minute Increments. Fifteen minute increment rates will replace variable unit increment rates (basic and extended). Currently, basic visits are for up to 59 minutes of contact time with a child and an extended visit is for 60 minutes or more. (2011-12 Value: $1.6 million; 2012-13 Value: $6.2 million)


    • Revise Early Intervention Rates to Update Wage Equalization and Transportation Factors. Rates for home and community-based visits will be revised to reflect updated wage equalization factors that account for salary differences across the State. In addition, other changes to the prices will be made to adjust travel time assumptions which are assumed in the rates. (2011-12 Value: $0.9 million; 2012-13 Value: $1.4 million)


SED / Special Education:

The Governor’s budget recommends the continuation of the $4 million for preschool and school-age special education teacher recruitment and retention funding.


– Barbara Crosier  




Cerebral Palsy Associations of New York State (CP of NYS) will not be running an insert in the Legislative Gazette this year. We will instead be using short profiles of people with disabilities in some publications and also as handouts for legislators and staff from the Governor’s Office over the next several months, including at Lobby Day. Instead of the insert, we plan to run a series of advertisements in the Legislative Gazette in conjunction with other statewide associations.


Although we have received some stories and profiles from Affiliates, we ask that you please continue to send us more, accompanied by compelling photos. Brief stories about people who receive support and services from your organization will help us all illustrate how real people all across the state will be negatively impacted by the proposed funding cuts.


Stories about how you have been able to provide services that meet the needs and goals expressed by consumers and their families are very powerful. Your stories and photos can help us show the positive impact of the work you do. We will make these stories and photos available through our website and in publications we expect to produce throughout the year.


– Al Shibley





The name of the Vocational Rehabilitation component of the Office of Vocational and Educational Services for Individuals with Disabilities (VESID) has been changed to "ACCES - Department of Vocational Rehabilitation."  ACCES stands for Adult Career and Continuing Education Services.  ACCES will remain a part of the State Education Department (SED) and the name change will not affect the services received by students/consumers.  The Special Education functions are now located in SED’s P-12 Office.


– Tom Hamel  




CP of NYS and other organizations across the state and the nation will celebrate Developmental Disabilities Awareness Month in March.


Together,” the theme for the month, encourages people to celebrate and support the inclusion of people with disabilities into neighborhoods, workplaces, houses of worship and schools. During Developmental Disabilities Awareness Month, CP of NYS and its 24 Affiliates will work to highlight the accomplishments of the more than 100,000 people with disabilities we support and the 18,000 dedicated employees across the state working everyday to provide support and services.


– Al Shibley  



Jill A. Warner, Executive Director/CEO of Jawonio, Inc., is one of three people appointed to serve on an informal advisory committee on deficit reduction by Harriet Cornell, Chairwoman of the Rockland County Legislature. “I am grateful that these public-spirited residents have agreed to develop ideas based upon their experience, expertise and concern for the county in which they live,” said Cornell in a written statement.

The other members of the advisory committee are Nicholas DeSantis, a partner in Bennett Kielson Storch DeSantis, the Government Services Division, and Morton Meyers, Executive Vice President of Rockland Community College and the chief financial and administrative officer of the college. All three members have had significant experience in both private and public sector finance.

Jill Warner has extensive knowledge of the service delivery system in the health, mental health, developmental disabilities, substance abuse and social services of both county and state government. She has worked with complex financing systems and she has brought successful financial change to Jawonio.

– Al Shibley





Marcel Martino, President and CEO at CP of NYS Affiliate Inspire of Orange County, has been named a recipient of one of The Greater Hudson Valley Family Health Center 2011 Pillars of the Community Awards. He will receive The Pillar for Lifetime Achievement Award at the Pillars of the Community Award Dinner next November. He is being honored for his extraordinary work in health and human services, and his positive impact on the lives of thousands of people with disabilities


Mr. Martino served on the Board of Directors for the Greater Hudson Valley Family Health Center for many years, serving as chairman for two years during his tenure.  He continues to be involved with the Family Health Center, working to identify new and creative collaborations and partnerships for Inspire and other agencies in Orange County.  The Pillars of Achievement is a distinct honor, with a long list of outstanding past recipients.  The Pillars Awards will be given at their Gala on November 5, which is typically attended by more than 300 people. 




Marcel Martino and Doug Hovey, recipient of the Pillars for Outstanding Community Service Award.



– Al Shibley





This Albany Times-Union Editorial is about how two arts organizations have merged some administrative functions to save money, and perhaps even save one of the organizations from going out of business.  This collaboration serves as an example for government and non-profit organizations.

Read more here


– Al Shibley





Hopes & High Expectations is scheduled to take place Friday, March 25, 2011, at the Inn on the Lake, 770 S. Main St., Canandaigua, NY.  The Keynote Speaker will be Eustacia Cutler, author of A Thorn in My Pocket: Temple Grandin’s Mother Tells the Family Story.  Seating is limited and will be granted on a first-paid, first-served basis.  For more information contact Happiness House’s Cheryl Coppola at (585) 394-1190, or follow this link:


– Al Shibley





Bill Reilly, staff member at CP of NYS, will be running the Boston Marathon on April 18 to raise funds to support Metro BlazeSports NYC. This unique sports training program will provide competitive athletic venues for young people with disabilities in NYC. 


Last year, Bill completed the NYC Marathon going backwards in his wheelchair in 6 hours and 53 minutes.  To date, Bill has participated in 28 marathons. Once the fundraising goal has been met, the BlazeSports pilot program will begin at Edward R. Murrow High School in Brooklyn.


If you would like to support Bill and donate to the project, you can do it online here  You may pledge for the entire marathon, or by distance run.


– Al Shibley





The New York State Developmental Disabilities Planning Council (DDPC) has announced the availability of funding in the amount of $50,000 (for an 18 month period) to conduct outreach activities to identify adult siblings of New Yorkers with developmental disabilities and conduct a needs assessment of demography, training needs and level of knowledge of state and national initiatives.


Important dates associated with this RFP are as follows:


3/4/11: Letters of Intent due

3/11/11: Q&A Posting date

3/18/11: Proposal Due date

June 2011: Award Announcement

11/1/2011: Tentative Contract Start date


For more information contact Jim Huben, Program Planner, or Karen Jackuback, Program Research Specialist, at 1-800-395-3372 (NYS only TDD/TDY), by Fax at 518-402-3505, or by e-mail at [email protected]  or [email protected].


– Judi Gerson




Nominations are being accepted for the 2011 Union Square Awards. The awards have been distributed approximately $16 million in Awards and grants to 225 New York City organizations in the past dozen years.

The Union Square Awards support emerging grassroots groups and organizations in New York City that address critical social justice issues and work in the following areas: homelessness and hunger; HIV/AIDS prevention, education and treatment; youth leadership and organizing; family and community development; economic self-sufficiency; and conflict resolution.  The Award includes a $50,000 grant.

The Union Square Arts Awards recognize arts organizations creating educational opportunities, building community, and promoting social change in New York City's low-income communities. The program seeks emerging and innovative organizations in all artistic disciplines including dance, theater, music, visual arts, media arts, creative writing, and radio.  The Award includes a $35,000 grant. Prospective candidates are identified through a nomination process and reviewed as they are received.

For more information, please visit

– Al Shibley




One evening last fall, staff and consumers from one of HCA's group homes were having dinner at a local restaurant.  A woman approached the group and stated that she knew that budgets were being cut for programs like ours and insisted on paying for the consumers’ dinners.  She was very nice and was thanked many times by the HCA staff and consumers.  Another man also came up and gave the group a coupon for 10% off of their next dinner. HCA continues to be motivated by random acts of kindness and support from the community.


All have had similar experiences. This just seemed to be a good time to pass along one piece of good news that may help to brighten your day.

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