Affiliate Update 2013

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5-13-13 CP NEWS

5/14/2013 10:52:36 AM

An html version of the 5/13/13 CP News can be found HERE.


5/13/13 Affiliate Update
(Volume #19 – Issue #8)


As part of our continuing effort to fully restore the funding cut to non-profit supports and services for people with developmental disabilities, CP of NYS has been working with other associations on legislation which will eliminate the entire $90 million/ 4.5% cut. The legislation, A.6692 (Weisenberg)/S.4777 (Golden), requires the workgroup, appointed in 2013-2014 State budget to develop the savings plan, to determine the extent to which the savings plan reduces the budget’s $90 million cut. Based on the workgroup’s recommendation, the Director of the Budget would be required to provide sufficient additional funding to OPWDD voluntary programs to make up for any shortfall remaining after the impact of the savings plan.

This proposal would fully restore funding to levels prior to the enactment of the cut proposed by Governor Andrew Cuomo. People with developmental disabilities, advocates, families, providers, media outlets and the NYS Legislature strongly advocated against the Governor’s proposed cut during budget negotiations and the budget debate in each House. There continue to be numerous media stories, especially in Western New York, on the cuts to not-for-profit supports and services for individuals with developmental disabilities.  To view some of these stories go to the CP of NYS home page at

We strongly support A.6692/S.4777 and urge you to request that your local legislators sign on as a co-sponsor of the bill.

Barbara Crosier


New York State Comptroller Tom DiNapoli issued a report in April that says that the 2012 overtime costs at New York State agencies jumped by 11 percent over the prior year, with the total overtime tab reaching $529 million in 2012. According to the report, OPWDD had slightly more than 4 million hours of overtime in 2012, for a total of $112.9 million. That averages out to 177.5 hours of overtime per year per employee — an increase for OPWDD from 111.8 hours in 2008 and 148.5 in 2011. The Comptroller’s report cites a concern that agency overtime has increased for the second year in a row after prior years of decline.  

The total number of overtime hours at OPWDD has risen sharply since 2007, while it has risen more moderately at the Department of Corrections (DOCCS) and dropped slightly at the Office of Mental Health (OMH). The overtime for all other agencies combined has dropped significantly.  OPWDD average overtime reached nearly seven hours per employee per pay period in 2012, as compared to just over four hours in 2009.

The Comptroller’s report offers an explanation for the sharp increase in OPWDD overtime. The report states that “OPWDD has experienced a steady drop in the total number of employees in the past several years, falling from an annual average of 25,316 in 2008 to 22,672 in 2012, a decrease of 11.7 percent.”

Barbara Crosier


CP of NYS strongly supports legislation introduced by Senator Carlucci (S.4885) and Assemblymember Gunther (A.6962) to establish a Managed Care for Persons with Developmental Disabilities Advocacy Program.

Individuals receiving Office for People With Developmental Disabilities (OPWDD) services will begin to transition into managed care in 2014.  Once Medicaid managed care for all DD services is fully implemented, there will no longer be Medicaid Service Coordination (MSC). As OPWDD services transition to managed care, MSC will no longer be a discrete function. Many of the MSC functions will be assumed by managed care companies but many of the advocacy functions, currently provided by MSC, will be lost.

Therefore, this Advocacy Program will address concerns and conflicts when they arise and assist people with individual problems and systemic issues.  If an individual is satisfied with their managed care supports, services and care coordination, they will not need to avail themselves of the Managed Care for Persons with Developmental Disabilities Advocacy Program. CP of NYS strongly supports S.4885/A.6962 because it will provide independent advocacy for people with developmental disabilities in managed care.

Barbara Crosier


James Cox, NYS Medicaid Inspector General
NYS Medicaid Inspector General James Cox speaking at 2013 Corporate Compliance Conference

Nearly 140 people from organizations across the state attended the 2013 Corporate Compliance Conference at the Marriott Hotel in Albany on May 2. The annual conference is presented by Cerebral Palsy Associations of New York State and NYSARC, Inc.

Marc Brandt, Executive Director of NYSARC, Inc., welcomed the audience and introduced the keynote speaker, James Cox, New York State Medicaid Inspector General. Mr. Cox acknowledged the challenges organizations face and expressed a desire for an open dialogue between his office and non-profit service providers.

Other sessions included a presentation entitled HIPAA/Hitech and the Omnibus Final Rule: The Seven Most Important Things You Need to Know Now to Comply. Jane Bello Burke, Esq. and Amy Goerss, Esq. of Hodgson Russ LLP presented this session.

David R. Ross, Esq. from the firm of O’Connell & Aronowitz presented an afternoon session entitled How to Prepare For and Survive an OMIG Audit. The day’s final session – It’s Not Easy Being A Compliance Officer! – was presented by Judy Trent, AHRC Nassau, Ellen Gutmaker, CHC, ARC of Onondaga, Maria Torgalski, Aspire of WNY and Jose Rivera, UCPA of Nassau County.

Materials from the conference are available at

Susan Hornbeck


CP of NYS Affiliate Home Service Directors met with representatives of the New York State Elks Association (NYSEA) Major Projects Corporation at regional sites April 18 and 19. A group of 14 met at Jawonio in New City on April 18 and 19 people met the next day at Happiness House in Geneva. Issues discussed ranged from the State Budget, to Medicaid, managed care, advocacy, and how to work more efficiently with other Affiliates and the Elks to promote and advance the mission of CP of NYS, its 24 Affiliates across the state and the Home Service Program.

James Peace, CEO of the Major Projects Corporation, attended both meetings and updated the group on the Elks’ fundraising and community relations activities in support of the Home Service Program. He also reaffirmed the Elks’ strong commitment to CP of NYS and the Home Service Program and discussed ways that the two organizations can strengthen the ties that have existed for nearly 50 years. Mr. Peace was joined in Geneva by the Chairman of the Major Projects Committee Lou Withiam and his wife Fran, and by Irene and Jan Pashley.  Ms. Pashley will become Major Projects Chair in May.  The Major Projects Chair works with committee members around the state to raise more than $400,000 annually to support the Home Service Program. The group will meet again on October 21 at the CP of NYS Annual Conference in Saratoga Springs.

Al Shibley

Photo taken by Karen Genua

Home Service Directors Meet at Jawonio
Left to right; Karen Taffuri, Home Service Director at Jawonio, James Peace, CEO NYSEA Major Projects Corporation, Mike Alvaro, Executive Vice President, CP of NYS and Jill Warner, Executive Director/CEO, Jawonio at the regional Home Service meeting in New City.


Many people who participated in the 2013 Boston Marathon are offering their perspective on the tragedy that killed three spectators and injured nearly 200 other people near the finish line of the event.

The Boston Marathon is different from most others in that it is run on Patriots Day. The state of Maine and the Commonwealth of Massachusetts have celebrated the holiday since the 18th century. In Massachusetts and particularly in Boston everything shuts down on the third Monday in April to commemorate the battles of Lexington and Concord and the beginning of the American Revolution.

One of the participants in the Marathon was Bill Reilly of Queens. Bill works in finance at the central office of Cerebral Palsy Associations of New York State (CP of NYS) in midtown Manhattan. He has cerebral palsy and uses a wheelchair to move about. Reilly has competed in more than 30 marathons around the country and he is known as Backwards Bill to many in the running community, because he navigates the 26.2-mile road race backwards in his specialized racing wheelchair.

Bill offered this brief account of the 2013 race.

“We were at 21 miles into the race when it happened,” he said of the bomb explosions on Boylston Street in downtown Boston. “We were not sure what had happened. We heard that there were two explosions around the finish line. One of my guides began to check online for news and learned that two bombs went off near the finish. We were told to go on to the finish line, which was moved. We did, but I was thinking if everything was fine why were we told to run on but the onlookers were told to leave?

About 45 minutes later I asked a cop if it was safe to go on and was told to go on. Not knowing any more than before. Soon after that 10 police cars went by with lights and sirens blaring, heading in the direction of the finish. I remember smelling smoke but can’t be sure what it was.

At mile 25 the police got people off the course. We saw many blue emergency lights and so got out of there. I should point out here that cell phone service was disrupted so we couldn’t contact anyone.

We decided to head towards the Charles River since our hotel was in the navy yard. At this point my cell phone rang and it was one of my brothers checking on me. I assured him I was OK and told him I would call him back. My concern then was to contact the Achilles Track Club people and let them know we were all fine. A cab saw me and picked us up. At that point we heard the terrible news that two people had died and 120 were injured. When we got back to the hotel I called my wife. We gathered our things and headed home to New York soon after.”

Bill is a dedicated marathoner and says he will continue to compete in the races. Will he be back in Boston next April for the 118th running of the Boston Marathon? “Oh yes,” he says.

Al Shibley


The Arc, with substantial contributions from UCP, other organizations, and individuals support an internship to honor Paul Marchand, a long-time advocate, to cultivate disability policy advocates.

The Paul Marchand Internship Fund will provide $3,000 per semester or summer session which can assist interns pursuing careers in public policy advocacy for people with intellectual and developmental disabilities.  For more information or application materials contact Annie Acosta, [email protected].  

Al Shibley


Happiness House, the CP of NYS Affiliate headquartered in Geneva, has been awarded $2.4 million through Governor Andrew Cuomo’s New York State Homes & Community Renewal (HCR) Unified Funding Application. This grant will assist Happiness House in building and maintaining a non-certified residence equipped with 20 apartments. The new residence, called The Living Center, will serve adults with traumatic brain injuries and intellectual/developmental disabilities, or any individual who is eligible for affordable housing. An additional $1.4 million was awarded last month as well as a gift from William Rayburn who provided the funding for engineering and start-up costs.

Happiness House will construct a two-story building on its existing campus in Canandaigua, NY. The home will have 18 one-bedroom units and two two-bedroom units. Each unit will have a living room, kitchen and bath. The Living Center will also be equipped with a community room, kitchen, laundry facilities and office space. Happiness House expects to break ground late this year and complete the project by the fall of 2014.

Al Shibley


United Cerebral Palsy of Nassau County (ucpn) was recognized as a winner of the inaugural Long Island Imagine Awards at a dinner held on May 7th at the Crest Hollow Country Club. The award recognizes innovation and leadership in the non-profit community. Over 130 entries were submitted, 20 finalists chosen and one winner selected in each of five categories.

The Rehab Solutions program at ucpn was the winner of the Social Entrepreneurism category in the competition. This award is given to an organization that achieves its primary social or environmental mission using business methods and original ideas with private support rather than funding from the government.

Bob McGuire, ucpn Executive Director, accepted the award and a check for $5,000 which was presented by Andrew Corrado of Capital One Bank. James Holman, ucpn grant writer, worked on this entry in collaboration with Charles Evdos, Development Director.

Al Shibley


In the 4/17/13 edition of the CP News, the article “Conference Addressing Specialty Care Management of Patients With Cerebral Palsy Scheduled For May 18” mistakenly identified David Roye, Jr. as Medical Director at UCP of NYC. David P. Roye, Jr., MD, is the Executive Medical Director, Weinberg Family Cerebral Palsy Center. Vincent Siasoco, MD, MBA, is Medical Director for UCP of New York City. We apologize for the error.

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