Affiliate Update 2014

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4-29-14 CP News

4/29/2014 3:26:53 PM

An HTML version of the 4-29-14 CP New can be found here.

 

Volume #20 – Issue #5


RALLY IN ALBANY FOR RESIDENTIAL DEVELOPMENT ON MAY 20
 
A statewide Flag Rally to highlight the need for continued residential development in New York State will take place May 20 at the Capitol in Albany.  

Assemblyman Harvey Weisenberg will speak at the 1:00 pm event and the organizing group is asking families from across the state to come out to this rally.  Please ask families of people with developmental disabilities to attend.

Volunteers are also needed to hold flags and deliver information packets to each of our 214 New York State Elected representatives.  Distribution of packets will begin at 9:30 am on the day of the rally. If you are able to assist, please contact [email protected] with ALBANY EVENT in the subject line.
 
For more information go to the organization’s facebook page at https://www.facebook.com/#!/FamilyAdvocatesUnited?fref=ts

Al Shibley


PATRICK DOLLARD NAMED 2014 CONSERVATIONIST OF THE YEAR BY OPEN SPACE INSTITUTE
 

Patrick Dollard 

Patrick H. Dollard, President & CEO of The Center for Discovery, was recently presented with the 2014 Land Conservation Award by The Open Space Institute (OSI). The award recognized Dollard for his years of service in advancing land conservation and public health through access to the natural world.

The Land Conservation Award was announced at OSI’s annual luncheon at the Metropolitan Club in New York City on April 3.  John P. Cahill, the former New York State Department of Environmental Conservation Commissioner and Chief of Staff for Gov. George Pataki, presented Dollard with the Land Conservation Award.  Author and journalist Calvin Trillin delivered the keynote address at the event attended by approximately 320 people.

The Center for Discovery and OSI have partnered on conservation projects that support the connection between open space, agriculture and public health. Farming plays a central role at The Center, providing both local, organic food for the staff and residents, and meaningful work and learning opportunities on the properties. The farm gives Center residents access to the natural world through an innovative educational initiative.

The Center offers individuals and their families’ innovative educational, clinical, social, creative arts and recreational experiences designed to enrich their lives through personal accomplishment.

Al Shibley



SAVE THE DATE - CP OF NYS ANNUAL CONFERENCE
 
2014 CP oif NYS Annual Conference

Monday, October 20 - Wednesday, October 22
Hilton Albany, Albany, NY

 
Watch your email for details!
 
 
 
WEISENBERG NOT SEEKING RE-ELECTION

Assemblyman Harvey Weisenberg (D-Long Beach) has announced that he will not seek re-election and will retire at the end of his term in December.

Weisenberg has served part of the south shore of Long Island’s Nassau County for 25 years.  As a former police officer, teacher, life guard and school administrator, Assemblyman Weisenberg brought an abundance of energy and experience to the job and has been a relentless champion for individuals with developmental disabilities, their families and staff.  Assemblyman Weisenberg was instrumental in getting the increase for Direct Support Professionals in the current state budget.  He will be greatly missed and we thank him for all of his years of public service and all that he has accomplished.

“As a parent and an advocate he made sure that issues important to people with disabilities and their families were not forgotten when decisions were being made in Albany,” said Susan Constantino, President & CEO, CP of NYS. “His departure from the Legislature will leave a void. We wish Harvey and his family the best in retirement.”

Barbara Crosier

COMPLIANCE CHALLENGES 2014
 
Cerebral Palsy Associations of NYS and NYSARC, Inc. present the 7th Annual Compliance Conference for Providers Serving People with Disabilities May 13 at the Hilton Garden Inn in Troy, NY.
 
There's still time to register for this year's Corporate Compliance Conference! If you haven't already done so, please click on the links below for more information on this conference that you won't want to miss.
 
Program Brochure

Register Online

 

REILLY RUNS BOSTON AGAIN



WILLIAM J. REILLY JR., an accountant at CP of NYS in Manhattan, recently participated in another Boston Marathon, finishing the race in 7 hours and 10 minutes. Reilly has now completed more than 30 marathons in his career.

EDUCATION COMMITTEE HEARS FROM PARAEDUCATORS

At the April 8th meeting of the Education Committee, Dee Berger, Principal of the Children's Learning Center at UCP Nassau, presented excerpts from her dissertation titled "I do as much as any teacher" - Role Ambiguity and Role Conflict Among Paraeducators in Private Special Education Schools.  Dr. Berger received her doctorate in Educational Administration in December 2013. Her research was conducted entirely within the 12 schools representing the downstate contingent of Affiliates of CP of NYS. She met with paraeducators from those schools and collected data from 419 paraeducators; about 89% of those working within the 12 schools.

Among the findings were:

•    Role ambiguity is a strong predictor of role conflict;
•    Male paraeducators experience greater stress than females;
•    Role conflict is lowest among paraeducators ages 50 years and older; and
•    The period of 5-9 years of experience working with children who have disabilities tends to be a time that paraeducators feel increased role conflict.

Dr. Berger also found that job satisfaction from working with children who have special needs is strong, although serious concern was expressed regarding pay and lack of appreciation. For more information about this important research, you can contact Dr. Berger at (516) 378-2000 ext. 260 or [email protected].

Judi Gerson


FIRST-YEAR EVENT A BIG SUCCESS FOR RACKER CENTERS

Franziska Racker Centers has developed a very strong working relationship with Cornell University and its men’s hockey program. The relationship began with goaltender David McKee several years ago, raising money to support Racker Centers’ programs and has grown under former player and current Cornell Assistant Coach Topher Scott. The hockey team has helped raise funds and public awareness for the Racker Centers over the years, but the relationship took a huge step forward on April 5 with the first annual “Racker Rivals Big Red” benefit hockey game.

A crowd estimated at more than 2,000 people showed up at Cornell’s historic Lynah Rink for an exhibition game between two teams comprised of hockey luminaries and local community leaders to raise money and awareness for the Franziska Racker Centers, the area’s CP of NYS Affiliate. Former Cornell All-American and Hockey Hall of Famer Joe Nieuwendyk and U.S. Hockey Hall of Fame goalie Mike Richter were the headliners, but there were other former stars and current hockey notables that piqued the interest of fans in the college hockey hotbed of Ithaca. The former National Hockey League greats were joined by 28 other players, most of them former Cornell men’s hockey players along with a few local dignitaries.

The event, which included a silent auction and a post-game VIP reception, raised about $60,000 and generated a great deal of public awareness for the people and programs at the Racker Centers. The players involved, as well as the organizers of the event, expect to do it again next year.

Al Shibley


HUSS JOINS CENTER FOR DISABILITY SERVICES

Sara Abigail Huss, M.D., has joined the medical team at Center Health Care at the Center for Disability Services in Albany.

Dr. Huss comes to the Center from Ellis Hospital in Schenectady where she was an Attending Physician in Physical Medicine and Rehabilitation. She specializes in the treatment of disorders which affect an individual's function and performance and impact mobility and activities of daily living. She is Board certified in Physical Medicine and Rehabilitation

Al Shibley


FOOD AND DRUG ADMINISTRATION CONDUCTS PUBLIC HEARING ON THE RISKS OF AVERSIVE ELECTRIC SHOCK TO MODIFY BEHAVIORS

A majority of members of an advisory panel to the Federal Food and Drug Administration (FDA) indicated that the risks of using aversive electric shock to modify behaviors outweighed the benefits of such procedures.  The Neurological Devices Panel of the Medical Devices Advisory Committee to the FDA conducted a public hearing at which disability advocacy organizations testified against use of aversive procedures, such as electric shock, on individuals with intellectual and developmental disabilities.  The majority of the panel concluded that electrical stimulation devices (ESDs) intended to administer a noxious electrical stimulus for the treatment of self-injurious behavior (SIB) and aggressive behavior presented a substantial and unreasonable risk of illness or injury.

The Judge Rotenberg Center (JRC) in Canton, Massachusetts manufactures and uses the Graduated Electronic Decelerator, or GED.  Versions of the device being used at JRC are unapproved modifications of a 1994 FDA-approved GED.  Staff from JRC as well as parents of individuals at the Center offered testimony during the hearing defending use of the GED.  JRC has been investigated by authorities in New York and Massachusetts and by the United Nations.  The Department of Justice has an on-going investigation of the Center.   

Barbara Crosier

 

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